Worldwide, an estimated 130 to 150 million people are
chronically infected with hepatitis C virus
(HCV). Obtaining reliable, update-to-date information on HCV is a major
challenge for health experts and HCV advocates. The quantity and quality of data
on HCV prevalence, access to prevention tools, availability and pricing of
diagnostics and drugs, treatment uptake, and national HCV policies varies
considerably across countries. Often, this information can be difficult to
obtain due to poor surveillance systems, limited diagnostic capacities, weak
infrastructure, and lack of political commitment or awareness. Particularly at
the national level, sources for recent,
consistently updated data are often scarce. Until now, there has been no
centralized system for collecting and
sharing this vital information with the international health community.
To address this lack of
data and enhance advocacy efforts, Médecins du Monde (MdM) and Treatment Action
Group (TAG) have launched mapCrowd, a new online crowdsourcing platform designed
to gather and publicize the most up-to-date country-level information on HCV.
Providing free access to national, regional, and international data, mapCrowd
allows users to draw visual comparisons between countries, using interactive
graphs, tables, and maps. Users can download the entire mapCrowd database in
Excel format for their own analysis.
Topics covered by mapCrowd include:
- General country information: development and health indicators
- Information on HCV Epidemiology
- Availability and price of HCV diagnostics
- Registration status, patent barriers, availability and price of HCV treatments
- National HCV policies and treatment programs
- Local organizations working on treatment access
The data on the mapCrowd website
originate from a combination of scientific publications and field-based
sources. mapCrowd relies on a network of
national HCV experts and advocates, or “mapCrowders,” who act as focal points
for data collection. Most mapCrowders are affiliated with non-governmental
organizations (NGOs). They are selected for their expertise in HCV advocacy and
their capacity to obtain country-level information from a variety of sources.
To supplement their contributions, mapCrowd also incorporates data gathered from a literature review of peer-reviewed medical
journals, expert reports, and institutional research.
MapCrowd data sources
General Country Information
- The World Bank Open Data (http://data.worldbank.org)
HCV Epidemiological Data
HCV Tests and DiagnosticsHCV TreatmentHCV Policy
- Lavanchy, D. (2009). The global burden of hepatitis C. Liver International, 29, 74-81. http://dx.doi.org/10.1111/j.1478-3231.2008.01934.x
- Gower, E., Estes, C., Blach, S., Razavi-Shearer, K., & Razavi, H. (2014). Global epidemiology and genotype distribution of the hepatitis C virus infection. Journal Of Hepatology, 61(1), S45-S57. http://dx.doi.org/10.1016/j.jhep.2014.07.027
- Messina, J., Humphreys, I., Flaxman, A., Brown, A., Cooke, G., Pybus, O., & Barnes, E. (2014). Global distribution and prevalence of hepatitis C virus genotypes. Hepatology, 61(1), 77-87. http://dx.doi.org/10.1002/hep.27259
- Riou, J., Aït Ahmed, M., Blake, A., Vozlinsky, S., Brichler, S., & Eholié, S. et al. (2015). Hepatitis C virus seroprevalence in adults in Africa: a systematic review and meta-analysis. Journal Of Viral Hepatitis, n/a-n/a. http://dx.doi.org/10.1111/jvh.12481
- United Nations Office on Drugs and Crime,. (2015). World drug report 2015. Vienna: United Nations publication, Sales No. E.15.XI.6.
- United Nations Office on Drugs and Crime,. (2014). World Drug Report 2014. Vienna: United Nations publication, Sales No. E.14.XI.7.
- Global policy report on the prevention and control of viral hepatitis. Geneva: WHO: 2013. apps.who.int/iris/bitstream/10665/85397/1/9789241564632_eng.pdfmapCrowders
website has been produced with the financial support of the French
Development Agency (AFD). The ideas and opinions expressed do not necessarily
represent those of AFD.
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